It's almost here!
We are so excited to being welcoming our community to San Antonio for what we are sure will be a celebration of hope and learning with the whole NALCN Channel and related disease community. If you are unable to join us in Texas, please consider registering for virtual attendance. This will allow you to watch live (with translation) or to view the recordings.
If you have NALCN or Channeling Hope Questions, please send them to emily@channelinghope.org. We can either ask them during the conference, or track down answers to be added to our social media channels after the conference.
🌟 Advocate of Hope Award 🌟
This award honors an extraordinary individual who has shown unwavering dedication to raising awareness, advocating for change, and supporting individuals and families affected by NALCN and related conditions. Their compassion, leadership, and commitment have made a lasting impact on both the community and the broader scientific and healthcare world.
Nominate someone who embodies hope, strength, and advocacy. 💙
Fill out Nomination form here: https://forms.gle/ZBdTQDycj9raCyf5A or email your nomination to emily@channelinghope.org.
#AdvocateOfHope #NALCNStrong #ChannelingHope #RareDiseaseAwareness
We are excited to be launching our Natural History Study which will help us track the progression of NALCN-related diseases over time to understand how these conditions affect patients. This information is important for developing treatments. Though we are concentrating on in-person visits at the conference this week, we are also working on virtual options. If you are interested in participating, please reach out to Emily (emily@channelinghope.org) so she can connect you with the research team. Together we can understand NALCN-related disease and advance NALCN Research!
Channeling Hope Coloring Contest is open to everyone! Pick your favorite page from our official coloring book and share your masterpiece on Instagram or Facebook using #NALCN. Submit by October 12 — winner chosen by the CHF board Sunday night after the conference ends. The winner will be contacted and mailed a conference swag bag! Let’s color with purpose and spread hope!
