A community of researchers and families driven to advance care and develop treatments for those affected by NALCN-related disorders. (NALCN, UNC80, UNC79, FAM155)
We are thrilled to announce that registration for the 2nd International NALCN Channel & Related Diseases Conference is now open! Join us in San Antonio, Texas, from October 9-12, 2025, for an incredible event dedicated to advancing research and support for NALCN-related conditions. Event Details: * Dates: October 9-12, 2025 * REGISTER
April 1, 2025 Update: We asked and you 63 of you responded! Drumroll please... Channeling Hope Foundation was 1 of 5 organizations selected for a natural history study! Families, if you haven't completed this survey, please do so! We still need to identify as many patients as possible
Reflecting on 2024, the Channeling Hope Foundation (CHF) is proud to share the remarkable achievements and milestones that marked the year. Our mission to support families affected by NALCN-related disorders and advance research has been propelled forward by the dedication of our patient community, partners, and supporters. Here are some
Originally posted 10/28/2024. Updated 5/28/2024 to reflect ongoing data collection through RareX. RareX is the host of the first patient registry for NALCN-related disorders. Data provided by families will provide a better understanding of the most common and impactful symptoms of NALCN-related disorders. The process for
In our last newsletter, we shared highlights from our organization's first year in operation. In this issue, we share what our scientific community has been up to. Expanding research collaborations in Asia Dr. Arnaud Monteil, the Director of CHF's Scientific Advisory Board, was invited to present
