A community of researchers and families driven to advance care and develop treatments for those affected by NALCN-related disorders. (NALCN, UNC80, UNC79, FAM155)
Early Bird Registration Extended to July 15 - We are thrilled to announce that registration for the 2nd International NALCN Channel & Related Diseases Conference is now open and early bird registration discounts have been extended to July 15. Join us in San Antonio, Texas, from October 9-12, 2025, for
We are thrilled to announce that registration for the 2nd International NALCN Channel & Related Diseases Conference is now open! Join us in San Antonio, Texas, from October 9-12, 2025, for an incredible event dedicated to advancing research and support for NALCN-related conditions. Event Details: * Dates: October 9-12, 2025 * REGISTER
April 1, 2025 Update: We asked and 63 of you responded! Drumroll please... Channeling Hope Foundation was 1 of 5 organizations selected for a natural history study! Families, if you haven't completed this survey, please do so! We still need to identify as many patients as possible to
Reflecting on 2024, the Channeling Hope Foundation (CHF) is proud to share the remarkable achievements and milestones that marked the year. Our mission to support families affected by NALCN-related disorders and advance research has been propelled forward by the dedication of our patient community, partners, and supporters. Here are some
Originally posted 10/28/2024. Updated 5/28/2024 to reflect ongoing data collection through RareX. RareX is the host of the first patient registry for NALCN-related disorders. Data provided by families will provide a better understanding of the most common and impactful symptoms of NALCN-related disorders. The process for
