A community of researchers and families driven to advance care and develop treatments for those affected by NALCN-related diseases (NALCN, UNC80, UNC79, FAM155)
Channeling Hope Foundation held a second "Friends and Family" webinar in February. The webinar was recorded for those that could not attend. Here's a summary of what we covered in the webinar. INCLUSION PILLAR REVISITED The Channeling Hope community of researchers and families are driven to
“Rare diseases may be individually rare, but they are collectively common. There are millions of people living with rare diseases. Today and every day, doctors like me care for rare, and it’s our privilege.” - Dr. Wendy Chung
Our community is growing! We have nearly 900 followers across our platforms from at least 27 countries. Our social media posts reach over 5,600 individuals throughout the world. Below is a map showing where our followers are located. One of the foundation's pillars is INCLUSION. We welcome
On behalf of the entire Channeling Hope Foundation team, we extend our heartfelt gratitude for your support! Your contribution plays a crucial role in helping us create a positive impact on lives affected by challenging NALCN diseases. We are excited to share an infographic that encapsulates the significant milestones and
In this edition: What's new on our website | Merchandise available for a limited time | Promotion for Giving Tuesday A special note from our Board: The US is celebrating Thanksgiving on November 23rd. We thank you for all of your support this year! We have a new webpage for
