The rare diseases caused by NALCN genetic mutations cause severe neurodevelopmental delay, and at their worst, are life threatening. Many children and young adults with NALCN-related disorders are unable to walk or talk and experience severe apneas or seizures. However, this doesn’t have to be their story.

Genetic research is transforming the landscape of rare diseases by providing crucial insights into their underlying causes and offering new possibilities for diagnosis, treatment, and ultimately, improving the quality of life for affected individuals. It's essential to support and fund genetic research to fully realize the potential of these advancements and bring hope to those living with NALCN genetic diseases.

The Channeling Hope Foundation is a 501(c)(3) non-profit organization registered in the United States (EIN: 93-2536735). All donations are tax-deductible and go directly to research.

Online Donation methods:

More ways to donate

  • Write a check to Channeling Hope Foundation and mail to: 239 Busby Drive / San Antonio, TX 78209 / USA. This avoids processing fees!
  • Employer matching is the easiest way to double or triple your donation! Check the database on this webpage to see if your employer will match your donation. Please email us if you need assistance adding us to your employer-specific database.
  • Please contact us with special circumstances or requests, including for international wires.

Channeling Hope Foundation operations

The Channeling Hope Foundation is a parent-led organization. All start-up costs were self-funded and no members receive financial compensation for their role. If you have any questions about the organization or your gift, please email us at

Before we were Channeling Hope Foundation

We are grateful to our friends and family who believed in our cause from the very beginning. Read about our fundraising efforts prior to organizing as the Channeling Hope Foundation.