Thankful

Thankful
NALCN patients and their families at Morgan's Wonderland, the world's first ultra-accessible themed park.

We are beyond grateful for the incredible support that made last month’s NALCN Channel & Related Diseases Conference such a tremendous success. Your commitment and collaboration brought this event to life, and we couldn’t have done it without you. We’re proud to share some of the highlights from our time together—thank you for being part of this journey!

Conference recordings and video highlights (shorts) are available on our new YouTube channel.
800+ pictures from our time together have been shared. Please enjoy and upload more images here (use PIN 3344).

With 3 studies launched at the conference, our patient community is powering research.

We’re thrilled about the incredible progress in our research efforts! As we move into the next phase, it’s important that our entire community knows how to get involved. Your participation can make a real difference. Click the button below to learn more about how you can contribute to advancing research. Email Emily@channelinghope.org with any questions.

Citizen Health sign-up by December 1, 2025 to be included in the initial retrospective natural history study!

We are still recruiting to Citizen Health for our review of medical records from patients with NALCN-related conditions. Sign up by the end of this week and have a chance to win incentives from Citizen Health. If you have questions, please reach out to Citizen or Emily@channelinghope.org

On the last day of the conference, we announced our Raising Hope campaign to raise $2.8 million by 2028 to discover treatments for NALCN-related diseases. We want this Giving Tuesday to be big!

During this season of giving thanks, we are grateful for your engagement and that you are part of our Channeling Hope Community. As we look forward towards our bright futures, we are excited to continue the momentum started at our conference by highlighting our Raising Hope Campaign during GivingTuesday and beyond.