Hall of Remembrance

To remember those we have lost due to NALCN Channel-related disorders. Treatments cannot come soon enough.

Carlie Grace Judson

July 25, 2022 - December 22, 2023

In loving memory of Carlie Grace Judson, born on July 25, 2022, in Lawton, Oklahoma. She joined her parents, Steve and Jennifer Judson, in March 2023. The Judson family recently became part of the NALCN community, rallying around Carlie's diagnosis of CLIFAHDD syndrome. Carlie's brief yet impactful presence touched countless hearts, bringing smiles to all who were fortunate to know her. Let us channel hope through remembrance, ensuring Carlie's spirit lives on.

The Judson family has asked that Carlie's spirit live on in pursuit of a brighter future for individuals affected by CLIFAHDD. Their hope is that families have more information to manage the complications of CLIFAHDD. Right now, there are not enough answers. You may give in her memory and join "Carlie's Tribe" here.

If you would like for your loved one to be remembered here, please contact a board member or email us.