CHF Newsletter - November 2023

CHF Newsletter - November 2023

In this edition: What's new on our website | Merchandise available for a limited time | Promotion for Giving Tuesday

A special note from our Board: The US is celebrating Thanksgiving on November 23rd. We thank you for all of your support this year!

We have a new webpage for families to access resources. On this page, you can find the recordings from the Family Round Tables at the NALCN workshop in September, plus ways to connect with other families. Log in on our website to be able to access all the information on this page. (It's free to sign up.)

Family Resources
Please log in to access our family resources. Includes videos, support group links, information links and more.

We also have a new webpage with scientific publications about NALCN. A special congratulations to Dr. Arnaud Monteil, who recently published everything there is to know about NALCN/UNC80 in physiology and disease. (Contact us for access.)

Dr. Monteil has long been a friend to NALCN families. Check out his spotlight on our Instagram or Facebook page. We are so fortunate to have him as the Director of our Scientific Advisory Board!

Publications
Send additions to this list to channelinghopefoundation@gmail.com CHF Publications List.2023-11-17.channelinghope.orgDownloadable List.CHF Publications List.2023-11-17.channelinghope.org.pdf190 KBdownload-circle 2023 Tian, Jinbin; Bavencoffe, Alexis G.; Zhu, Michael X.; Walters, Edgar T. (2023).…

Channeling Hope Foundaton Apparel 2023
Online ordering for Channeling Hope Foundaton Apparel 2023 ends on Sun, Dec 3, 2023 (11:59 PM EST)

We have a special store open for you through November 30th. You can order all your favorite Channeling Hope gear in time for December 24th. You can find these options and more in the online store.

All proceeds from this fundraiser will support the Channeling Hope Foundation mission.

Please consider sharing Channeling Hope Foundation on Giving Tuesday, November 28, 2023. Whether it's on social media, in an email, a text, or face to face, we hope you will help spread the word on our organization!

Share this link on social media and it will direct people to our donation page: https://shorturl.at/puwEP

We compiled resources for you to use on social media platforms on November 28th to celebrate #GivingTuesday and share your support for CHF! Resources include post images, a temporary profile picture, and story image. Please add the shortlink https://shorturl.at/puwEP and the following hashtags to your posts: #NALCN #CHANNELINGHOPE

Find the resources saved on Facebook.

Maximize your donation by checking to see if your employer will match it! Please contact us at channelinghopefoundation@gmail.com if we to complete any paperwork to add CHF to your employer's list of eligible nonprofits. Remember to check before the end of the year!

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For a smile today, check out NALCN kids enjoying Halloween! Thanks to all the families who submitted pictures!

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