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The rare disorders caused by NALCN genetic mutations cause severe neurodevelopmental delay, and at their worst, are life threatening. Many children and young adults with NALCN-related disorders are unable to walk or talk and experience severe apneas or seizures. However, this doesn’t have to be their story.
Genetic research is transforming the landscape of rare diseases by providing crucial insights into their underlying causes and offering new possibilities for diagnosis, treatment, and ultimately, improving the quality of life for affected individuals. It's essential to support and fund genetic research to fully realize the potential of these advancements and bring hope to those living with NALCN-related disorders.
The Channeling Hope Foundation is a 501(c)(3) non-profit organization registered in the United States (EIN: 93-2536735). All donations are tax-deductible.
Online donation methods:
- Donate in honor or memory of an NALCN patient. Select from ongoing family fundraisers or start your own by selecting "I want to fundraise for this" to get started.
- Join as a "giving" member of Channeling Hope Foundation. Choose from a selection of monthly or annual donation amounts.
- Donate through the PayPal Giving Fund for the lowest fees (1.99% + 0.49 USD).
- Text NALCN to 44-321
Other donation methods:
- Mail check to Channeling Hope Foundation, 239 Busby Drive, San Antonio, TX 78209, USA
- We can accept Donor Advised Funds.
- Employer matching is the easiest way to double or triple your donation! Check the database on this webpage to see if your employer will match your donation. Please email us if you need assistance adding us to your employer-specific database.
- Please contact us with special circumstances or requests, including for international wires.
Funding focus
All donations go towards supporting our mission to build a global community of families and researchers to advance care and develop treatments for individuals affected by NALCN Channel-related diseases. Aligned with our commitment to transparency, our IRS form 990 discloses how we use donations. If you have any questions about the organization or your gift, please email us at info@channelinghope.org.
Before we were Channeling Hope Foundation
We are grateful to our friends and family who believed in our cause from the very beginning. Read about our fundraising efforts prior to organizing as the Channeling Hope Foundation.