Patient Resources
Information about NALCN Channel-related disorders can be found in this Fact Sheet from the New South Wales Center for Genetics Education.
Our community is global! It includes individuals affected by NALCN-related diseases, their families, the scientists who work to find answers, and the clinicians who care for our community. Together we will meet our mission to advance care and develop treatments for individuals affected by NALCN Channel-related diseases. Not sure you are on the map? Email Emily@channelinghope.org
The following resources are connections we have made that you might find helpful:
Once Upon a Gene is a blog and podcast about her family's journey through life with rare disease.
