Thank you for signing up & Greetings from Spain!

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A handful of NALCN families and 40+ researchers and physicians are only a few days away from attending the first-ever international meeting on NALCN and related disorders in Alicante, Spain. The Channeling Hope Foundation is excited to be a part of this 1st NALCN workshop. As a mother, Shayanne is honored to represent the families who cannot attend the patient family round tables in person (this Friday and Saturday) and will be asking the questions that were submitted in advance to the researchers and physicians. Families are invited to attend the round tables virtually by requesting a video link. Please contact us at channelinghopefoundation@gmail.com if you are are having issues receiving the video link.

We'll also report back after the meeting. In the meantime, follow along with us at @ChannelingHopeFoundation on Instagram!