Jul 12
Time 2 Celebrate!
We are celebrating 2 years as the Channeling Hope Foundation!
This milestone has us looking back at all we have
1 min read
CHF
Jun 26
Big News! Big Changes! Bigger Plans!
Early Bird Registration Extended to July 15 - We are thrilled to announce that registration for the 2nd International NALCN
5 min read
Apr 16
EXCITING NEWS: Registration Now Open for NALCN 2025!
We are thrilled to announce that registration for the 2nd International NALCN Channel & Related Diseases Conference is now open!
2 min read
Mar 01
Patient Families: Make your mark!
April 1, 2025 Update: We asked and 63 of you responded! Drumroll please...
Channeling Hope Foundation was 1 of 5
2 min read
Jan 27
From Milestones to Momentum: Reflecting on 2024, Building in 2025
Reflecting on 2024, the Channeling Hope Foundation (CHF) is proud to share the remarkable achievements and milestones that marked the
4 min read
Oct 28
Patient Data Collection through RareX is Live
Originally posted 10/28/2024. Updated 5/28/2024 to reflect ongoing data collection through RareX.
RareX is the host
3 min read
Oct 01
CHF Science Around the World
In our last newsletter, we shared highlights from our organization's first year in operation. In this issue, we
4 min read
Aug 05
It's our 1st Birthday!
In July, we celebrated the first anniversary of our founding, and August marks one year of having 501(c)(3)
2 min read
Jun 21
Skin to Stem: One family's odyssey to the space city to support CLIFAHDD research
Researchers on Channeling Hope's scientific advisory board need to collect a skin biopsy from a current patient to
2 min read
May 14
Project Wellcast: Clinical Trial
August 2025 Update: Enrollment has closed. We hope all the families that participated learned valuable play and/or coping skills.
2 min read
May 07
Phenotype Study Webinar
You can access the recording of this webinar on our Family Resource Page. Access is for members only (free option
2 min read
Mar 19
Scientific Update
Channeling Hope Foundation held a second "Friends and Family" webinar in February. The webinar was recorded for those
5 min read